tag:blogger.com,1999:blog-7631451666879199613.post7154727242718223872..comments2023-11-05T07:37:23.135-05:00Comments on LIFE AT TRACEY SPEED: Finally an answer.....DUANE SYNDROMETraceyhttp://www.blogger.com/profile/11064113501129840818noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7631451666879199613.post-65753512363905444792014-10-18T15:16:17.898-04:002014-10-18T15:16:17.898-04:00Hi, my daughter has just been diagnosed with duane...Hi, my daughter has just been diagnosed with duane syndrome. I have facebooked you - would love to ask some questions.<br /><br />Thanks!<br /><br />EveEvehttps://www.blogger.com/profile/14690239007175276523noreply@blogger.comtag:blogger.com,1999:blog-7631451666879199613.post-75505524752786764692014-08-15T07:57:25.556-04:002014-08-15T07:57:25.556-04:00Christine....I didn't see a way to contact you...Christine....I didn't see a way to contact you so maybe you'll see this. The picture of Sam is him actually doing the eye roll himself. It wasn't like that all the time. He did have the surgery and now he just moves his eye to freak people out. It was a simple surgery at age 2 and although he still has astigmatism there are no other problems. Contact me if you have other questions. I'm also on FACEBOOK. Thanks and good luck.Traceyhttps://www.blogger.com/profile/11064113501129840818noreply@blogger.comtag:blogger.com,1999:blog-7631451666879199613.post-79720563617731312852014-08-15T07:57:21.320-04:002014-08-15T07:57:21.320-04:00Christine....I didn't see a way to contact you...Christine....I didn't see a way to contact you so maybe you'll see this. The picture of Sam is him actually doing the eye roll himself. It wasn't like that all the time. He did have the surgery and now he just moves his eye to freak people out. It was a simple surgery at age 2 and although he still has astigmatism there are no other problems. Contact me if you have other questions. I'm also on FACEBOOK. Thanks and good luck.Traceyhttps://www.blogger.com/profile/11064113501129840818noreply@blogger.comtag:blogger.com,1999:blog-7631451666879199613.post-56682401914156796382014-08-14T23:41:26.144-04:002014-08-14T23:41:26.144-04:00hi Tracy, I know your post was a few years ago but...hi Tracy, I know your post was a few years ago but I just came across it. I'm a 37 year old female with the same condition as your son.my case is quite mild and is only noticeable in pictures because I overcompensate with the head turn. I was wondering if you ever got that second opinion for your son? I was a little confused when you mentioned the doctor had said it was a muscle because my understanding is that it is a lack of communication from the nerve to the muscle, which cannot be treated.if there is any additional information that you found out, please fill me in Because I'd like to get mine treated too. Thanks Christinechris shttps://www.blogger.com/profile/13437313327397667696noreply@blogger.comtag:blogger.com,1999:blog-7631451666879199613.post-15890387128736329962011-08-07T15:21:29.909-04:002011-08-07T15:21:29.909-04:00Dear Tracey,
I found your blog while looking for...Dear Tracey, <br /><br />I found your blog while looking for information about dual syndrome. I found the picture of your son first. I had the exact same kind of picture of me when I was little! <br /><br />My name is Amélie, I'm 29 and I have the dual syndrome too. I also have the okihiro syndrome which is a malformation of my left arms.<br /><br />I wanted to comment your post to tell you not to worry to much. Even if I have dual syndrome I don't have back issues. When I m tired I get a stiff neck but nothing major. <br /><br />I did get surgery but it was 25 years ago. They fixed my right eye which forces me to use my left eye which seems "lazy".<br /><br />I don't know if it was the best thing to do... But it worked so far!<br /><br />I'm sorry if my english is so bad. I'm from belgium... <br /><br />If you have any question, I'll be happy to help. <br /><br />I do too believe that "God never closes a door without first opening a window."<br /><br />Amélie de Limbourg<br />amelimb@hotmail.comAmélie de Limbourghttps://www.blogger.com/profile/13165164851905603785noreply@blogger.comtag:blogger.com,1999:blog-7631451666879199613.post-14682051493294646952011-01-28T20:30:04.302-05:002011-01-28T20:30:04.302-05:00I like the idea of a second opinion, but it does s...I like the idea of a second opinion, but it does sound like it fits.Conniehttps://www.blogger.com/profile/12108160961086709884noreply@blogger.com